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Nyttig litteratur om unge og ungdomsmedicin

Hvornår er man ung?

  • Sawyer SM et al. The age of adolescence. Lancet Child Adolesc Health 2018;2:223-228 
  • McDonagh JE, European Training Effective Care and Health Faculty. The age of adolescence…and young adulthood. Lancet Child Adolesc Health. 2018;2: e6. doi: 10.1016/S2352-4642(18)30079-8. 

Unge og tavshedspligt

  • Boisen KA, Adolphsen C, Svensson J, Beck Jensen R, Teilmann G. Lægers tavshedspligt ved behandling af unge kan være et dilemma. Ugeskrift for Læger 2016; 178: 1991-5 

 

Unge i et globalt perspektiv

  • George C Patton, Susan M Sawyer et al. Our future: a Lancet commission on adolescent health and wellbeing. Lancet 2016; 387: 2423–78 . http://dx.doi.org/10.1016/S0140-6736(16)00579-1 

 

Anbefalinger til et ungevenligt sundhedsvæsen

  • Thomsen EL, Hertz PG, Blix C, Boisen KA. A national guideline for youth-friendly health services developed by chronically ill young people and health care professionals – a Delphi study. International Journal of Adolescent Medicine and Health 2020, doi: 10.1515/ijamh-2020-0185

  • Ambresin A.E., Bennett K., Patton G. C., Sanci L. A. & Sawyer S. M. Assessment of youth-friendly health care: A systematic review of indicators drawn from young people’s perspectives. Journal of Adolescents Health 2013; 52: 670-681.

 

Hjernens udvikling

  • Dahl RE et al. Importance of investing in adolescence from a developmental science perspective. Nature 2018; 554: 441–450. https://doi-org.ep.fjernadgang.kb.dk/10.1038/nature25770
  • Tetteh-Quarshie S et al. Adolescent brain maturation and the neuropathological effects of binge drinking: A critical review. Front Neurosci 2023; 17:16. doi: 10.3389/fnins.2022.1040049.
  • Delia Fuhrmann, Lisa J. Knoll, Sarah-Jayne Blakemore. Adolescence as a Sensitive Period of Brain Development. Trends in Cognitive Sciences 2015 http://dx.doi.org/10.1016/j.tics.2015.07.008 
  • Lucy Foulkes and Sarah-Jayne Blakemore. Studying individual differences in human adolescent brain development. Nature Neuroscience 2018; 21: 315–323

 

Forældres roller og behov

  • Thomsen EL, Esbensen BA, Hanghøj S, Hansson H, Boisen KA. Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs). BMC Health Serv Res. 2022 Apr 12;22(1):485. doi: 10.1186/s12913-022-07888-5.
  • Thomsen EL, Khoury. LR, Møller T, Boisen KA. Parents to chronically ill adolescents have ambivalent views on confidential youth consultations – a mixed methods study. International Journal of Adolescent Medicine and Health 2019, doi: 10.1515/ijamh-2018-0226
  • Shaw KL, Baldwin L, Heath G. ‘A confident parent breeds a confident child’: Understanding the experience and needs of parents whose children will transition from paediatric to adult care. J Child Health Care. 2021;25(2):305-319. doi: 10.1177/1367493520936422. 
  • Morris AS et al. We Know Even More Things: A Decade Review of Parenting Research. J Res Adolesc. 2021; 31(4): 870–888. doi:10.1111/jora.12641.

 

Samtalen med unge

  • Boisen KA, Denning LV, Teilmann G. Livsstilssamtalen med unge, HEADS anamnesen som model i almen praksis. Månedsskrift for Almen Praksis, 2014, 340-348 
  • Goldenring and Rosen. Getting into adolescent heads: An essential update. Contemporary Pediatrics 2004; 21(64):64-90
  • Chadi N et al. Expand your HEADS, follow the THRxEADS. Pediatrics and Child health 2017: 23-25

 

Transition

  • Sundhedsstyrelsen. Anbefalinger for transition fra børne- og ungeområdet til voksenområdet i sygehusregi, SST 2020
  • Gabriel P et al. Outcome Evidence for Structured Pediatric to Adult Health Care Transition Interventions: A Systematic Review. J Pediatr 2017; 188: 263-9
  • Schmidt A. m.fl. Outcomes of Pediatric to Adult Health Care Transition Interventions: An Updated Systematic Review. J Pediatr Nurs 2020; 51:92-107. doi: 10.1016/j.pedn.2020.01.002
  • Colver A et al. A longitudinal, observational study of the features of transitional healthcare associated with long-term conditions. BMC Medicine 2018; 16: 111
  • Stollon N. m.fl. Chronological Age When Healthcare Transition Skills Are Mastered in Adolescents/Young Adults With Inflammatory Bowel Disease. World J Gastroent. 2017; 23:3349-55.
  • NICE guideline. Transition from children’s to adults’ services for young people using health or social care services. 2016. https://www.nice.org.uk/guidance/ng43 
  • Singh SP et al. Supporting young people in their transition to adults’ services: summary of NICE guidance. BMJ 2016; 353: i2225 doi: 10.1136/bmj.i2225
  • Thomsen EL, Esbensen BA, Hanghøj S, Hansson H, Boisen KA. Development of a complex intervention to support parents of adolescents with chronic illness transferring from pediatrics to adult care (ParTNerSTEPs). BMC Health Serv Res. 2022 Apr 12;22(1):485. doi: 10.1186/s12913-022-07888-5.

 

Trivsel og hverdagsliv blandt unge med kronisk sygdom

  • Lund, Michelsen, Due & Andersen. Trivsel og hverdagsliv blandt børn og unge med kronisk sygdom. 2019 www.sdu.dk/sif (vedhæftet)
  • Podcasten Fårking Kronisk v. Mette Aas Jacobsen

 

Unge og risikabel adfærd 

  • Pilapil M & DeLaet D. Health risk behaviors in adolescents and young adults with special health care needs. Curr Opin Pediatr 2015 Feb;27(1):132-7.
  • Sannegowda  R et al. Recent Rates of Substance Use Among Adolescents and Young Adults with Type 1 Diabetes in the USA. Current Diabetes Reports 2023; 23:1–17. https://doi.org/10.1007/s11892-022-01496-7
  • Bento SP et al. Substance Use among Adolescents and Young Adults with Type 1 Diabetes: Discussions in Routine Diabetes Care. Clin Pediatr  2020 ; 59: 388–395. doi:10.1177/0009922820902433.
  • Lund, Michelsen, Due & Andersen. Trivsel og hverdagsliv blandt børn og unge med kronisk sygdom. 2019 www.sdu.dk/sif
  • Faggiano F, Minozzi S, Versino E, Buscemi D Universal school-based prevention for illicit drug use. Cochrane Database Syst Rev. 2014;2014(12):CD003020. doi: 10.1002/14651858.CD003020.
  • Pastor A, Conn J, Teng J, O’Brien CL, Loh M, Collins L, MacIsaac R, Bonomo Y Alcohol and recreational drug use in young adults with type 1 diabetes. Diabetes Res Clin Pract. 2017;130:186-195. doi: 10.1016/j.diabres.2017.05.026. 
  • GBD 2017 Child and Adolescent Health Collaborators. Diseases, Injuries, and Risk Factors in Child and Adolescent Health, 1990 to 2017.Findings From the Global Burden of Diseases, Injuries, and Risk Factors 2017 Study. JAMA pediatrics JAMA Pediatr. 2019;173(6):e190337. doi:10.1001/jamapediatrics.2019.0337

 

Unges behandlingsadhærens

  • Fidler A et al. Meta-Analysis of Adherence Promotion Interventions in Pediatric Asthma. Journal of Pediatric Psychology, 2021, 1195–1212 doi: 10.1093/jpepsy/jsab057
  • Hoch De Keyser H et al. They just don’t take their medicines_Reframing medication adherence in asthma from frustration to opportunity. Pediatr Pulmonol. 2020 March ; 55(3): 818–825. doi:10.1002/ppul.24643.
  • Hommel KA et al. Longitudinal Patterns of Medication Non-Adherence and Associated Health Care Costs. Inflamm Bowel Dis 2017 Sep;23(9):1577-1583.  doi: 10.1097/MIB.0000000000001165.
  • Hanghøj S, Boisen KA. Self-reported barriers to medication adherence among chronically ill adolescents: a systematic review.  Journal of Adolescent Health 2014; 54:121-138
  • Matthew F. Lerch et al. Adolescents with chronic illness and the transition to self management: A systematic review. Journal of Adolescence 2019; 72: 152–161
  • The Society for Adolescent Health and Medicine. The Use of Medication by Adolescents and Young Adults. Journal of Adolescent Health 2017; 61: 396-399
  • Andreoni KA et al. Age-related kidney transplant outcomes: health disparities amplified in adolescence. JAMA Intern Med 2013; 173: 1524-32
  • Lars Osterberg et al. Adherence to Medication. N Engl J Med. 2005;353:487-97
  • Institut for Rationel Farmakoterapi. Compliance, 2006 

 

Unge og fysisk-mental multimorbiditet

  • Romano I, Buchan C, Baiocco-Romano L, et al. Physical-mental multimorbidity in children and youth: a scoping review. BMJ Open 2021;11:e043124. doi:10.1136/bmjopen-2020-043124
  • Iturralde E. Implementation of Depression Screening and Global Health Assessment in Pediatric Subspecialty Clinics. Journal of Adolescent Health 61 (2017) 591e598
  • Vejledning fra Rigshospitalet: Screening for mental trivsel blandt unge med alvorlig og kronisk somatisk sygdom
  • Butwicka A et al. Association of Childhood-Onset Inflammatory Bowel Disease With Risk of Psychiatric Disorders and Suicide Attempt. JAMA Pediatr 2019. oi:10.100/jamapediatrics2019.2662
  • Daniel TH Dybdal, Janne S Tolstrup, Stine M Sildorf, Kirsten Arntz Boisen, Jannet Svensson, Anne Mette Skovgaard, Grete Katrine Teilmann. Increasing risk of psychiatric morbidity after childhood onset Type 1 Diabetes: A Population-based Cohort Study. Diabetologia 2018; 61(4):831-838
  • Sildorf SM, Breinegaard N, Lindkvist EB, Tolstrup JS, Boisen KA, Teilmann GK, Skovgaard AM, Svensson J. Poor metabolic control in children and adolescents with type 1 diabetes and psychiatric comorbidity. Diabetes Care. 2018 Sep 29. pii: dc180609. doi: 10.2337/dc18-0609. 
  • Corathers S et al. Implementation of Psychosocial Screening into Diabetes Clinics: Experience from the Type 1 Diabetes Exchange Quality Improvement Network. Current Diabetes Reports (2023) 23:19–28 https://doi.org/10.1007/s11892-022-01497-6

 

Samtalen om seksualitet og kønsidentitet

 

Samtalen om rusmiddelbrug